Monday, June 27, 2016

Let's Support Each Other and Stop The Shaming

Lane Graves was attacked and killed by an alligator
at the Grand Floridian Resort and Spa at Walt Disney World
Most days, I love my job.  As a TV news executive producer, it's something different every day.  But some stories hit me harder than others.  I've been known to break down in tears in the newsroom because a story hits too close to home.  Recently there was a story about a two-year-old boy who was attacked and killed by an alligator at Walt Disney World.  This story made me physically sick for a number of reasons-
1. A precious baby boy is dead, and his family was left broken.
2. Walt Disney World is my happy place.  Nothing this sad should happen there.
3. When my kids were little, they played in the sand along the water at several Walt Disney World resort hotels.
4. I used to live in Florida and I know that where there's water, there are alligators.
5. The awful reaction on social media.  Nameless, faceless people behind a phone or a computer pointing fingers and laying blame- mostly at the parents.

This reaction hit me very hard, because it reminded me of all the shaming that happens among autism parents.  It seems odd.  It seems like we should all be able to support each other and build each other up.  After all, no one knows more about our daily struggles than another parent, right?  Why do we have to judge other parents?  Why do we have to question every move they make?  WHY???

Over the last 9 years as an autism parent, I've seen parents shamed and belittled for trying special diets or biomedical treatments.  I've heard parents "attacking" other parents for their support of Autism Speaks or other autism organizations.  I've seen parents shake their heads in disgust at other parents who decided to take a break completely from all therapies and treatments or who delayed getting a diagnosis.  I've seen parents get angry when someone suggests finding a "cause" or a "cure" for autism.  I've heard parents question other parents for their decision to medicate or not medicate their children.

Being a parent is hard, being a parent of a child with special needs is beyond hard.  I know I'm not perfect.  I'm always second guessing myself.  The LAST thing I need is SOMEONE else shaming me too!  But I do the best I can, and I think other parents are just trying to make the best decisions for their children and their families.

Despite all this judgement that can come with being a special needs mom, I think it's the exception rather than the rule.  There are also some truly amazing people who have come into my life because of Nathan and his autism.  From teachers, aides, therapists and doctors who I now consider friends, to other moms who have become my family (believe it or not, I've never even met many of them!).
"The Special Needs Mom Show" is a new podcast for
moms of kids with special needs.  It will debut in September 2016
One of those friends has asked me to co-host a new podcast with her.  It's called "The Special Needs Mom Show" and it will premiere in September!  While we prepare for the big debut, we are also building a Facebook community.  It's a judgement free zone for moms of kids with special needs, so we can take care of our own special needs!  Click here to join!

So, next time you're tempted to judge other parents, maybe give them the benefit of the doubt first?  They may be just like me and you.  They may be filled with self-doubt and just trudging through life and trying to make the best of every day.

Wednesday, June 22, 2016

Reward the Behavior You Want

Over the last couple of weeks, I've been sharing some valuable information I've learned about how to help my 11-year-old son with autism deal with some challenging behaviors.

First, I told you about giving effective directions, then I told you what happened when we stopped punishing bad behavior and started praising good behavior.  Now, let's take praise a step further to rewarding.  We set up a reward system for Nathan to help motivate him to get things done- like homework and getting ready for school.
This is a sample reward chart some other parents
in my class used.  It breaks down behaviors/tasks into
easy understand steps
A reward can be small or big.  He can get it right away, or save up points (or checks or stickers) for a bigger prize later.  A lot of therapists and teachers have tried reward charts with Nathan before, but he doesn't really care about most prizes, so they haven't worked well.  I set up a system where he could earn his favorite things- either the computer or video games.  Instead of just giving him the computer and video games, and taking them away if he had an outburst, he would earn minutes on the computer for doing things he has to do anyway. Some activities would be worth 5 minutes, some 10, and some 15!  We also agreed to some larger prizes that he could work towards- family movie night, a trip to the zoo, a visit to the library.
This is Nathan's reward chart.  We reward him for just
about everything he has to do during the day.
You can decide what will motivate your child.  Some kids love a grab bag or prize box filled with little toys and games.  Nathan has never been motivated by this- many teachers and even doctors offices have them, but he just doesn't care enough!  Some kids love candy, so a couple M&M's could be a good reward.

Once you decide what behaviors you want to work on, then you need to talk to your child about the chart.  Choose a calm day and place to explain the new point chart.  Start by talking to your child about the rewards he will be able to earn. Ask if he has any suggestions for other prizes.  Go through the chart and explain how many points he can earn for each behavior and how he can get some prizes immediately or save up for a bigger prize!  Be enthusiastic!  Rewards and prizes are fun!  Next practice the behavior with your child.  Model what you want him to do, then have him do it.  He even earns rewards for practicing!  Don't just practice once, practice again and again to get him used to the system and to help him earn rewards faster!

Now, you're ready to get started!  Good luck, you can do this.  It's not easy, but in the long run it will be worth it.

Tuesday, June 14, 2016

Stop Punishing, Start Praising

Last week, I told you about the 10 steps for giving effective directions when dealing with difficult behaviors in children with autism.  The key to success with those steps is ignoring bad behavior and praising good behavior.

When is the last time you punished your child?  Gave him a timeout, took away a favorite toy, or lost your patience and yelled?  This was the almost daily struggle in our house- I would ask my 11-year-old son Nathan to do something (get dressed, brush his teeth, come to dinner, go to church- basically anything!), Nathan would yell and scream no, sometimes he would hit me or curse at me.  Then I would get upset, send him to his room and take away his iPad, computer or video games.  But on the occasions when he would listen I wouldn't praise him- I was basically ignoring the good behavior.
Instead of punishing bad behavior,
give your child a high-five when he does something right!
I was doing it all wrong.  During my recent research on how to help Nathan I took a Parent Management Training class.  Believe it or not, I should have been ignoring the bad behavior and praising the good.

Here's an example of what I should be doing.  When I say, "Nathan, please come to the table, it's time for dinner," if he starts yelling at me, I should remain neutral.  Don't yell, don't threaten.  Just wait.  About a minute later again I should say, "Nathan, please come to the table.  It's time for dinner." If he continues to yell or if he curses, I do nothing.  I just gently guide him to the table.  I don't say anything.  I make sure my face is neutral.  But, if instead of arguing with me about coming to the table he actually does it, I would praise him, "Wow, Nathan!  You came to the table when I asked!  That's awesome!"
Give him a thumbs up!
Or if he does something really great,
give 2 thumbs up!
The first time I ignored the yelling, Nathan stopped in the middle, got right in my face and said, "What?" He was waiting for my reaction, he wanted it.  I can't say this worked right away or all the time, in fact his behavior got worse at first.  But as time went on, Nathan's behavior got much better.

So how do you praise your child?  (At Nathan's summer camp - Our Victory Day Camp - they call it being "caught doing something good")  Every time you see your child doing the right thing- praise him.  When you praise make sure you do the following:

  1. Deliver praise close to your child.  Like I said when I talked about the keys to giving directions, make sure you're close to your child and that you have his attention.  If you're in another room or even on the other side of the room he can't see your excitement and may not even know you're praising him.
  2. Give praise immediately.  As soon as your child follows your instruction, praise him!  Don't wait for later.
  3. Use a sincere, enthusiastic tone of voice.  You don't need to be loud, but make sure you sound excited.
  4. Use nonverbal reinforcers.  Give your child a high five, a thumbs up, a pat on the back, a wink or some other indication that you're excited.  And make sure you smile- he followed your directions, that's a big deal!
  5. Be specific.  This was the hardest one for me.  Tell your child EXACTLY what he did to make you happy.  I realized I usually say something like, "Good boy" or "Great job" or "You did it" but none of those tell him WHAT he did. And I realized, he didn't understand WHY I was excited.  So, say something like, "Wow! Thank you so much for picking up your shoes and putting them in the closet! (high five)"
Make sure you smile while you praise!
(This is Nathan's idea of smiling for a picture!)
This type of praise should happen EVERY TIME!  So I know what you're thinking, I'm going to be praising him all the time.  Yes, hopefully you will.  That's the goal!  Isn't that better than yelling or fighting all the time?  If you're consistent, it will help.

After we were consistently praising good behaviors we started targeting specific things we wanted from Nathan- getting ready for school in the morning was a big one.  Coming up next week, how we went beyond praising to rewarding to really change Nathan's behavior.

Monday, June 6, 2016

I Need to Change Before I Can Change My Son

have been incredibly preoccupied lately.  We've been struggling with some challenging behaviors with Nathan, our 11-year-old son with autism.  What are challenging behaviors?  They're different for every child- but for us it includes yelling, hitting and cursing when we ask Nathan to do something he doesn't want to do or if we change his schedule without warning.

For the last six months, Nathan has been seeing a behavioral psychologist at Westchester Institute for Human Development.  Also, since February, I have been taking a parent management training class for parents of children with autism at Westchester Jewish Community Services.  I've also read several books, including, "The Loving Push" by Debra Moore Ph.D. and Temple Grandin Ph.D. and "No More Meltdowns" by Jed Baker.

I've been doing all of this hoping to find some miracle to "fix" Nathan's behavior, but instead I ended up learning an important lesson- I need to change, before I can expect him to change.  Parenting isn't usually rocket science- you tell a child to do something and hopefully (maybe after asking a few times) the child will do it.  But how do you give those directions?  For a child with autism, you have to really think before you speak.

Over the last few months, I've learned the 10 steps to giving effective directions.  Hopefully you can learn something from them too.  (Oh, and I'm going to let you in on a little secret- these work for kids who don't have autism- and husbands too!)

1. Directions should be direct and not in question form.  I realized that I often ask Nathan to do something, instead of telling him to do something.  "Nathan, do you want to come to dinner?" "Nathan, why don't you brush your teeth?" "Nathan, can you put your shoes in the closet?" So, what was  happening when I asked these questions, I would get a "NO!" If I ask him a question, it gives him the option, it implies that he has a choice.  So, instead, I am now saying, "Nathan, please come to dinner", "Nathan, please brush your teeth", "Nathan, please put your shoes in the closet".  By telling, and not asking, I am not giving him the option to say no.  So easy, right?!?!

2. Directions should be stated positively.  This one wasn't so easy for me.  We're always telling your kids what NOT to do.  "Don't run", "Stop flapping", "Don't put your feet on the table".  The problem with this is that sometimes, kids don't automatically know what we want them to do instead. It's not as obvious to them as it may be to us.  So instead of using a negative to correct your child, use a positive opposite instead.  "Please walk." "Please keep your hands calm and in your lap." "Please put your feet on the floor." This way the children are not trying to figure out what we want from them.  It leads to less frustration.

3. Directions should be given only once you have the child's attention.  We're all distracted these days.  We all have a million things going on, even our kids.  So before I start giving him directions, I will say, "Nathan, look at me." This way I know he's paying attention to me.  I realized that before I would ask him to do something 5 or 6 times, but he never even heard me, because he wasn't even paying attention!

4. Directions should be given only when you're close to the child.  This one goes hand-in-hand with #3.  I often would yell from the kitchen, and tell the kids to come to the breakfast or dinner table.  Guess what happens- no one came!  So instead, now I will walk to where Nathan is and tell him to look at me (remember #3, get his attention) and say, "It's time for dinner, please come to the table." It works.  So before you tell your child to do something make sure you're close to him.

5. Directions should be given one at a time.  This one was actually not a new one for me.  We've been working on trying to get Nathan to follow multi-step directions for years.  He just can't do it.  It's overwhelming.  If I told him, "Nathan, go to your room, put on your pajamas and get into bed", it would never happen.  He might go to his room and sit on his bed, but he will forget the other steps.  Also, putting on your pajamas is a multi-step direction on it's own, right?  Think about everything involved in putting on your pajamas- you need to take off your shirt, take off your pants, take off your socks, put them all in the hamper, open the drawer, take out a pair of pajamas, put on the pajama shirt, and put on the pajama pants.  That's a lot!  No wonder it's so hard to do!  So instead, give one direction at a time.  "Nathan, it's time to go to bed, please go upstairs." Once he's upstairs, I talk him through the other directions.  (I have to say, this has really worked.  This week, Nathan got completely ready for school by himself one morning- he went upstairs, got dressed, brushed his hair, brushed his teeth and made his own cereal.  This is huge!)

6. Directions should be specific.  When is the last time you told your child to "Be good," or "make good choices" or even "pick up your toys." All the time, right?  But what do any of those directions mean?  Instead of saying be good or make good choices- tell your child specifically what you want them to DO.  Use kind words, keep your hands to yourself, use an inside voice.  Another mom in my parent management training class said she told her son to pick up his toys in his room.  When she went into the bedroom a little while later, all the toys were on his bed- but not in the toy box.  He did pick them up off the floor, but he didn't know what to do with them once he picked them up, so he just put them on the bed.  The next time she told him to put his toys in the toy box, and he did it!

7. Directions should be age and developmentally appropriate.  You can't tell a child to tie his shoes if he doesn't know how.  Or to draw a hexagon if he's just learning what a square is.  Make sure your child is able to physically and cognitively able do what you're asking him to do.  It will just make everyone's life easier.

8. Directions should be given politely and in a quiet toned voice.  You may have noticed, I've written the word "please" a lot.  That's because even though I'm not asking Nathan to do something, I still need to be nice about it.  This also models good manners and teaches the child to obey polite directions instead of needing to yell.  So I'll no longer say something like, "Get your dirty feet off the table, that's gross! (in an angry tone)".  I can just as easily say, "Please take your feet off the table (in a calm, neutral voice)." Then say thank you when he does it!

9. Directions should be explained before they are given or after they are obeyed.  This is a tough one.  Your child is going to challenge you and your authority.  So when you say, "Please put your blocks away." He's going to say, "Why?" or "I don't want to."  Don't engage, this will lead to an argument.  Ignore his response and wait.  If your child doesn't follow the instruction after a minute or so, repeat it.  It's so easy to engage and say something like, "Because I said so", or "Because I'm the parent" or "Just do it!".  But does this ever work?  Not in my experience.  Then later, in a calm, quiet moment, you can talk to your child about why you told him to put his blocks away.

10.  Only give a direction twice, more than two times and it becomes nagging.  Okay, this was the hardest one for me, but believe me, in the long run it's worth it.  If your tell your child to do something and he doesn't do it, tell him again about a minute or so later (you need to give him enough time to process what you're tell him to do). After you repeat the direction, give him another minute or so and if he still doesn't do it, do it yourself.  But don't make a big deal about it.  Don't say, "Look, you didn't get dressed, so now I have to dress you myself."  Don't even talk or make eye contact with the child.  This will really be a shock to their system!  One morning before school, when I told Nathan to get off the computer to get ready for school, he didn't.  I asked him again.  He still didn't get off the computer.  So I went over, turned the computer off, and gently guided him up the stairs and to his room, took off his pajamas and put clean clothes on him.  At first he was yelling and trying to hit me.  But when I didn't engage with him, he was so thrown off.  I wouldn't talk or make eye contact.  He didn't know what to do.  After he was dressed, he apologized and followed my instructions for the rest of the morning.

Those are the 10 steps!  Remember, to not use the following words:  NO, STOP, DON'T, QUIT IT.  You can use these words in an emergency.  For example, if your child is running toward a road, of course, yell "STOP!"
This video is from February, shortly after I
started taking parent management classes and
a few months after Nathan started seeing a
behavioral psychologist.  I had just told him
to turn off the computer.  Usually he would curse
at me and hit me.  You can see how hard he
is working to control his anger and his
surprise when I praise him for not cursing.
I didn't do everything correctly, but 
you can see the difference already.
(At the end is a little video of our other son,
Drew playing piano, not sure how that got there!)

So my husband, Jason, and I have been working really hard to change ourselves and be better parents to Nathan.  I can't say he ALWAYS listens or that we always follow the rules correctly (we're all human!), but things have gotten so much better in the Cook household.  There are very few meltdowns, I can't remember the last time Nathan cursed, and he never hits us anymore.  There is still whining.  But it only lasts a few seconds, or he'll whine while he's following my directions!  This is progress!

In step 10, I talked about ignoring.  Coming up in my next blog post, I'll talk about planned ignoring and praise.  What it is, how it works, and how it's helped in our family.